I would also like to point out today just how lucky I am to be alive; I do not discuss my MS that much, because honestly I have no attacks of MS and haven’t had one since 2013.
From diagnosis in 1996 – 2013, I used needles, injectable treatments..
Travel was greatly compromised because of difficulty in boarding a plane with needles. And those were injectable drugs, Avonex, the first, intramuscular, huge needles no matter your size, same for me at 96 pounds and for someone 200 pounds. A side-effect was flu-like symptoms, and that is what I had flu, redness, and scarring, and injection scars on my thighs…. 1996-1998, then Rebif, a three times a week, subcutaneous injection, now flu three times a week, redness and scars, I still have scar tissue, lumps under my skin on my thighs. I lost an inch of hip on each side, by the way.
Then in 2013, a capsule twice a day every day, no holiday exclusion. But let me tell you what a difference the capsule Tecfidera has made. My neurologist Dr. Tiffany Braley, has even remarked that my level of function is as if I do not have MS.
I walk quite a bit, five miles last Friday. Please understand how remarkable that is. Not only that I can walk, but at age 62, I can do this and even went skipping down the hospital corridor when I last saw Dr. Braley. My friend started calling me “Skipper”. Little things like that made me glow inside.
The last thing I will point out is my nearly impossible survival of an aneurysm rupture. I want into the hospital in July 2011, same night Amy Winehouse died, and did not not come home until 9 October 2011. The actual rupture occurred when I was in the ER; had I not been there, I surely would be dead. I had to learn how to walk again, how to talk again –it was assumed and predicted that these were things I’d never do again, but the emergency brain surgery was performed by Dr. Neeraj Chaudary who says another MRI for the aneurysm is not necessary until 2019. He too is amazed…. I have not had a single headache; of course, my head was shaved for the cranial surgery.
After that, a great love of my life, but surely not the last, just hope I don’t miss it, refuse to sleep through my life, and I have written a couple of books, no one thought I could do that, a man who dared to call me pretty, beautiful, and gorgeous
–please understand that no other man had ever called me that, just unsolicited catcalls when I walked by…. I was married for 40 years to a man who never called me that, not even at the wedding. And not even for my senior prom from high school, because he took me to that also, but did not dance with me. He told me that he could not dance, and that my head would swell if he acknowledged my appearance positively.
Prom Thylias, age 17
Bride Thylias 1973
Thomas Robert Higginson did not care what size my head was. I will always love him just for that, but there are so many more reasons.
Had the rupture of the aneurysm not happened, I never would have seen him, because when I did not die, I realized it was my last chance to try to have MY life, so a divorce happened for a marriage that should not have happened; I was a teenager, and entered marriage blindly.
post emergency surgery photos of Thylias Moss, following repair of a ruptured cranial aneurysm
July 2011, University of Michigan Hospital
(Chicago taxi photo from: https://goo.gl/images/dztwNq)
This wonderful man had been waiting for me all this time. And he really talked to me, and I really talked to him, it was so easy to trust him and tell him everything, the TRUTH! –that’s all I told him: the truth. He listened to me and he loved my poetry. It wasn’t about him then, but so much of it is now. I hope he’s not embarrassed by the praise, but when someone has done as much for you as he’s done, it is right to acknowledge that and express gratitude. Even when he stops doing it. What he did remains true even if he never does it again in that season of doing impossible things, and that may be the problem, the things he did were impossible in a world that depended on “possible” spines to hold the fragile together, that Vashti Astapad Warren and Thomas Robert Higginson bubble wavering in Chicago light and stretching thinner and thinner until it has to break for nothing that thin gets to last, it promises to last then has to confront its own, his own weak humanity moseys out in spectacular crash and burn, the world has never seen such fireworks as those spines themselves spit and sputter in otherwise impossible heat of blazing love that will have to burn out for what can sustain anything like that? Even Shadrach, Meshach and Abednego would have trouble despite their experience with a fiery furnace which is just what the Chicago taxi became: a blazing yellow spine navigating Chicago streets, seen best from an aerial view to better determine the exceptional impossibility that anything like that, such love in ordinary Chicago, the spininess of the yellow spine of dream best seen from above with the rest of heaven: it really was like that.
Vashti Astapad Warren and Thomas Robet Higginson in Chicago
And then, then, wow! He kissed me in Chicago! And from that moment, my life has not been the same. I owe him my glimpse of a beautiful world; I could always see it in my mind, but now I know it’s real, and that world is much better with him beside me. Even if he lands elsewhere changing his mind and his heart which he gave to me for just a little while, life goes on doesn’t it?
I like how he looked in that Chicago fire, my red lips, Kiss burned into them; I do not believe that any man could look better, even if he does not believe that, but I assure you that it’s true.
When Thomas and I first seriously connected , I had pink hair. This was when Facebook allowed me to be called “Forker Gryle” and Thomas always spelled “Gryle” “Gyrl”
But then the rules changed, the Facebook world was fragile also. Such delicate dancing around and tiptoeing also so as not to disrupt anything trying to reach a stage of doneness to be able to fight its way into the most unlikely birth, somehow succeeding for a time, best time, to be honest, as I must, of my life (I won’t be 63 until 27 February, 2017, and no, I do not expect to hear from Thomas anymore. That would require a miracle best associated with that severed spine of dream, those bones stitching themselves back together as they refuse to die, strength of their belief in their own existence and the Love that Vashti Astapad Warren and Thomas Robert Higginson, shared and will forever share. (Bases for the characters in the novel)
No, he’s not perfect as conventional knowledge defines “perfect”, but Thomas Robert Higginson is perfect for Vashti just as Vashti Astapad Warren is perfect for him.
Thank you for everything, Thomas Robert Higginson that you did in the Higginson season, when Hurricane Vash (a prose poam coming soon to Outlook Springs) also sometimes emerged with her fragile kiss of spine of dream. Some cookies crumble even inside a Dream Baby Tienda, and do not require those inevitable power failures in order to crumble and rock the flimsy house that somhow manage to stand until the wrecking ball of urban renewal that changes the neighborhood into something for the most part unrecognizable even to the man in the mirror.
I hope that you read this, but it’s true even if you never see it. Truth has a way of lasting when nothing else prevails. In the end it will be truth that is the last thing standing: a true pillar of truth will be there. And only a lucky and honest few will be able to see it, that Entrance to the “Dream Baby Tienda” (major part of New Kiss Horizon, Thomas Robert Higinson’s own supermercado)
Only for you, Thomas Robert Higginson have I been, will I be “Dream Baby” my name taken from the poem you wrote to me, as was your name “Higginson” for the Higgs boson, also in your poem, my poem, our poem:
A Trip to the Tienda
by Thomas Higginson
— for Vashti
You are my rent-a-poem
You are love jungle — Yoyo, hula hoop!
You are my closing costs
My plasma vibrator my single malt
You? You are my Tampa manatee
You are my Occupy
You are an eucalyptus octopus
And a haircut on an autumn day
You are firecracker, salt, oil, vinegar
Things not supposed to mix
You are jellyfish tentacles elongating my back,
dreaming of medusans all of which become you,
Also submarine. Surreality check.
You you…! You YOU you!
That’s who. The Temple of Shenanigans,
AKA Shenanigan Temple.
The complete works. The leftovers.
Strangler fig, tiny seeds starting out on branches,
tines, grow to surround, encase the host,
leaving only figs
to take over
You surround me just that way, take over,
connect with me, to me: your host
You are what I’ve been waiting for
And now I’ll never wait anymore.
Dream baby, you are, and indefatigable,
That, too. And you are the cream in my coffee,
And you are the one, and you are my everything,
And you are everything I could hope for.
And still you are more, and still you keep coming,
You are coming like a river, like a torrent,
Like an all day-lollipop where every day is today.
You are the Castle of Doubt on the Plain of Forgetfulness.
You are one more and able to laugh it off.
My sunshine, that’s what you are.
A rocking chair and a band-aid. Violin castanets.
An elusive perfume. You are all history. You are
Breakfast and you are on your way and all
I can do is list, name, and hand out passports.
Because you are who you are in a way that is all
Your way and which, as a poet trying to set it down,
Failure, I am a failure in that you will always be
Something to me both bedrock and ineluctable,
A passion of opposition and an unchecked probity
Of Probability and yet a chemical formula not to be
Tested. The Higgs boson, that’s it exactly. A gluon.
A ramshackle melody. A forgotten memory that
Never happened and when all is said and done,
Actually nothing was said and nothing was done.
That’s why I keep writing endlessly penning, because that’s
Who you are and when I stop, Surprise, you are
The surprise, you are the inching to the summit,
The chocolate razor, the tadpole’s pole and the
Gate to the Fields of the Lord. I sing you praises and
The answer is more like a light fog saxophone, a
Kingdom Come revelation, a hunch that blossoms
to birth a new species. An appointment for lunch.
Some nectar in a tube, a pillow. Like the new language you
Are, if I could write that I would, you in a race car,
A pendulum, a fire tower, a blimp. A pothole, narcissus,
An a capella cantabile, a big bucket of milk. I can run alongside
You but can’t keep up with you, your tapdancing
Shadow, your clothing made of earth and spit. But I know you
And when you wish me Happy Birthday I trade it for yours,
You not growing old, you everlasting, you infinity you.
(from New Kiss Horizon:
copyright © 2016 by Thylias Moss. Published by arrangement with the author. All rights reserved.)
Read all about them in my romance novel: “New Kiss Horizon” The book can last forever even if the romance in real life doesn’t, for that couple is in a world that seldom exists in reality, but I made such a world for them: in Chicago: “Let there be love” I told the pen and there was love in real life too for as long as it could last. I really am a better person for learning how to give love, how to receive love, and how to kiss in a taxi, #howtokiss #thomasroberthigginsonisthebestcarnalteacher
and now to commemortes the warmth and heat of those forever precious days: “Warm Water ” by Banks: